Tag Archives: Miracles

Spiritual, Thoughts

Letters to God – Part 28: Celebrate the Good Things

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Today I was scolded by one of my friends, because I didn’t write about the good news that we had last week. And she is right! It’s so much easier to delve in the bad news, in the pain, the indecision. Why is this? Why are the positive thoughts drowned so fast by the negative ones?

Anyway, to our point. Live has been really good for the past half year (the last time I wrote was in November, so yes, almost half a year. How time flies), between MRI and MRI we had an awesome trip to Orlando and Miami with many lifelong experiences, my son kept going to school, living life, and in general doing great. The doctors kept on looking inside his head and telling us to start treating, but we decided to wait an give him the best we could (both physically and emotionally).

And last month MRI time came again, and somehow our instincts broke down and we let our brains decide to start treatment. Looking back at this decision, I’m not sure why we took it other than that – breaking under the constant pressure of our doctors (the many different ones that we consult all the time). Not that they are wrong. Nobody is right or wrong here – that is the biggest problem in our case. It’s all a matter of opinion. So with our heads down and our hearts broken, we returned to the weekly chemo schedule.

But you still had a surprise for us…

We always send the MRIs overseas to get a second opinion from one of the world’s experts in the subject, and we did the same this time. But we didn’t wait for him to answer. And after doing the second round, their recommendation came back: Do Not Treat.

WHAT???

Shock. Joy. Confusion. Why do they recommend this? Why didn’t we wait for their answer before starting treatment?

We felt as in the story of Abraham and Isaac. We took our child to the altar, bound him, and were ready to sacrifice him… and then God came and said “OK, no need for you to do this. I see you will do what is needed when needed, so untie your son and continue with your life” [I’m paraphrasing here, obviously].

So we are back to our “normal” life, happy to be back here. And trying to remember every day that we have to celebrate every breath we take, the small things in life, just being alive together. And not taking the good things for granted. Celebrating every day.

Spiritual

Letters to God – Part 22: Miracles

miracles

A year and a lifetime ago, my son woke up in the middle of the night vomiting and with a crushing headache. Somehow we never imagined this could happen… But as always, life is full of surprises.

Looking back, it feels like ages. Almost 4 weeks in intensive care, 10 more days in the surgical ward, 6-7 months in rehabilitation. And still a long way to go. Or will it ever end? Last week we had to run again to the hospital. Nothing serious, but this week he’ll be back in the operation room…

God, I’m tired.

The book of Shmot (Exodus) tells of great miracles that you did in the past. Blood, frogs, hail, fire. Death. The opening of the sea, the manna from the sky. But at the same time it gives us a lot of rules on what we can and can’t do, what we should and shouldn’t do. I thought about this and came to the conclusion that sometimes you do miracles, but most of the time we are here on our own, in a world that has its own rules, most of which we don’t understand.

Sorry God, but I don’t care about these rules.

I want a miracle. And the sooner the better.

We are waiting…

Spiritual

Letters to God – Part 7: Purim

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source: http://kosherinvenice.blogspot.co.il/2012/03/its-jewish-venice-purim-time.html

Yes God, I know Purim was a while ago, and an eternity for me. But you know I’ve been busy and I also managed to destroy my computer last week… So just now I managed to sit down to write.

What can I say, Purim, the most waited festival for the children. Everyone puts on a costume, we all read the Megila together, give each other sweets (and let our children intoxicate on them for one day). A fun day overall.

But as you know, this Purim we had to stay with my son in the hospital. And what was very interesting is that this wasn’t a sad Purim. For me, it was the best one ever. For starters, my son is alive and getting better each day, which by itself is something that keeps me happy. But more than that, while in his room at the hospital, about every 10 minutes someone came by to give their blessings. Some came with a guitar and sang, some gave candies and more intoxicating sweets, another group of youngsters had almost a full orchestra in our room. I saw mothers with their kids come and spend their “vacation” day on visiting the ward and giving each child a drawing and a get-well gift. It was so inspiring, so energizing, so wonderful!

Seeing so much love gives so much strength… Than you God for this great day you gave me.

But next year, can you please arrange for me something with a BBQ in it?